- Carolina Fragile X Project
- A series of studies examining the impact of fragile X syndrome (FXS)
on individuals, families and the agencies that serve them.
- Conquer Fragile X, Inc.
- Creating a virtual research center in Israel to find a cure.
- Familyvillage
- Links to places to talk about Fragile X.
- Fragile X Association of Southern
California - Fragile X Syndrome is the leading inherited cause of
developmental disabilities and mental impairment worldwide. It affects
1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259
females are carries of the premutation.
- Fragile X Syndrome
- Single page on recognition of the condition in young children.
- Fragile X
Syndrome - Diagnostic and Carrier Testing - A Policy Statement from
the American College of Medical Genetics.
- Fragile
X Syndrome - HealthlinkUSA - Information concerning treatment, prevention,
diagnosis, email groups, support groups, and personal stories. Updated
regularly.
- FRAXA Research Foundation Home Page
- Non-profit organization run by parents. Fighting to find a cure for
Fragile X Syndrome and helping Fragile X Family's.
- The National Fragile X Foundation -
The National Fragile X Foundation informes and educates about the Fragile
X Syndrome.
- Online Support
Group - Support group for Family's who are dealing with Fragile
X Syndrome.
- What is Fragile X?- From the
Fragile "X" Association of Southern California.
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