- A-Z Directory of
Cystic Fibrosis Resources - Biomedical directory with listings of
hospitals, charities, research, and information by topic and location.
- The Breathing Room -
Guidance about the art of living with cystic fibrosis.
- CF Prescriber - Provides
a place to search various databases for Cystic Fibrosis articles, links
to other CF sites, a message forum and a wide variety of information
on management of the disease.
- Cindy's Friends - Information
about the disease, progress being made towards a cure, and fundraising
efforts in Tennessee.
- CysticFibrosis.com- A
support network where you are connected to resources, advice, information
and compassionate guidance to help you and your family.
- Cystic
Fibrosis at School- Some information that may make it easier for
you and students.
- Cystic Fibrosis Foundation- Provides
access to the latest research and publications.
- Cystic
Fibrosis Health FactSheet - Concise factsheet on causes, symptoms
and treatment of cystic fibrosis, this factsheet can also be downloaded
in Acrobat format
- Cystic
Fibrosis I.Q. Test - Test what you know about cystic fibrosis.
- Cystic Fibrosis Links
- Cystic Fibrosis Links and Information
- Cystic
Fibrosis Management - Article detailing therapeutic options for
co-management.
- Cystic Fibrosis Medicine
- Provides free information to professionals involved with the treatment
of cystic fibrosis. An open access section is also available to both
patients and family
- Cystic Fibrosis
Resource Center - Directory about Cystic Fibrosis, including books,
medical news, articles and information, links, message boards.
- Cystic Fibrosis Resource
Centre - A source of information for cystic fibrosis patients, parents,
doctors and other carers.
- Cystic Fibrosis Western
Australia - Includes a calendar of events, information for people
with CF who travel to Australia from other countries (what their healthcare
entitlements are), pointers for teachers of children with CF, and a
list of services and support.
- CysticFibrosis.com - Internet
community for cystic fibrosis patients, families and loved ones. Information
on clinical trials, gene therapy, testing, associations, research and
events.
- Home
Page-Harminder - Details from an article "CFTR as a cAMP-Dependent
Regulator of Sodium Channels". Also, what new treatments might devolop
if the theory behind this article prove true.
- Irri Shark's
Page - About the '65 roses' story.
- Jewish
Genetic Diseases - Cystic Fibrosis - Page with basic information
on Cystic Fibrosis: symptoms, incidence in people of Jewish descent
(Ashkenazi Jews), diagnosis, treatment, and screening.
- Mamas Health
- Find out what Cystic Fibrosis is, the symptoms and the causes.
- Manual
for Cystic Fibrosis Patients and their Families - From the European
Thematic Network for Cystic Fibrosis. In depth information in PDF.
- MyCysticFibrosis.com
- Personal management tools to help track important health measures,
together with in-depth articles and personal support from site specialists.
Members can share data with caregivers and their healthcare team.
- Peter Rabbit
has Cystic Fibrosis- A site that explains CF to children.
- PulmonologyChannel
- Information on cystic fibrosis.
- Teacher's Guide to
Cystic Fibrosis- A fact sheet for teachers, answers questions about
students with CF.
- The Spirit of Lo - Inspirational
Book - Book about Cystic Fibrosis and the effects on the family.
Tells the story of an ordinary family and their struggle with having
a chronically ill child.
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